To mark World Mitochondrial Diseases Week 2026, the Queen Square Mitochondrial Disease research & clinical teams welcome you to join us for our Lily Foundation bake sale fundraiser!

When: 11:00AM - 3:00PM, Thursday 17th September

Where: Foyer outside the Old Board Room, Ground Floor Albany Wing

National Hospital for Neurology & Neurosurgery

Queen Square, London WC1N 3BG

Thank you for your generosity & support :)

About Mito

Mito or Mitochondrial disease is a rare genetic disorder. Our mitochondria are essentially the tiny organelles within our cells that generate most of the energy we require to function.

Without healthy mitochondria, cells cannot function properly and the results can be debilitating and eventually life-ending.

It’s a complex and difficult-to-diagnose condition that affects people in very different ways. It often affects babies and young children, and the long-term prognosis for sufferers is poor.

There is currently no cure for mitochondrial disorders, but The Lily Foundation are working hard to change that and support those affected.

The Lily Foundation

Every other day in the UK, a baby is born who may develop serious mitochondrial disease. The Lily Foundation was founded in 2007 by Liz Curtis in memory of her daughter Lily, who died from mito at just 8 months old. Finding little information or support to help her, Liz set out to provide answers for herself and others in her situation. The charity exists today to support affected patients and families, raise awareness of this little-known but incurable genetic condition and fund research into treatments and an eventual cure.