I am tackling Ilkley triathlon on 28th September to raise money for the charity Dystonia UK.

In August last year our 10 year old daughter Maisie was diagnosed as having the illness called Dystonia. This is a terrible debilitating illness which has meant major adjustments to Maisie’s daily life and also that of the whole family. Since Maisie’s diagnosis life for our family is very different, but we are finding a new norm and a different way of life living with Dystonia and the required adjustments.

It is so important that we raise money to fund research into this condition in the hope that one day a cure can be found.

Any donation will make a huge difference to the Dystonia community.

A brief description of the illness is below:

Over 100,000 people in the UK are affected by Dystonia, which is a neurological condition presenting with uncontrollable and sometimes painful muscle spasms. Dystonia is a lifelong condition that affects both adults and children that currently has no cure.

Dystonia UK is children and adults with dystonia, carers and clinicians, fundraisers and families, medical professionals and our amazing members and supporters, all working side by side. Through our fundraisers and supporters (yes that is you!), we can carry on our mission, so thank you!

Thank you so much for your support