Andrew Stockley

My fundraiser for PNH Support

Fundraising for PNH Support
£115
raised of £200 target
Donations cannot currently be made to this page
Mass walk round Ladybower Reservoir , 24 February 2024
Be there for people living with PNH and join our annual Super Rare campaign! You’ll help us deliver expert emotional and practical support and information - and earn yourself an exclusive Super Rare tee!

Story

How PNH Support are planning to help people this year:

-Provide expert emotional well-being support, designed and delivered by qualified psychologists

-Help members of our community to access benefits and insurance

-Publish new up-to-date information resources to help people understand the condition, current research and treatment

-Facilitate improved opportunities for peer-to-peer support

-Raise awareness and help you to explain the condition to clinicians, teachers, employers, and the public.

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About the campaign

Be there for people living with PNH and join our annual Super Rare campaign! You’ll help us deliver expert emotional and practical support and information - and earn yourself an exclusive Super Rare tee!

About the charity

PNH Support

Verified by JustGiving

RCN 1161518
We support patients living with Paroxysmal nocturnal haemoglobinuria (PNH) and their families in England, Wales and Northern Ireland . Our vision is "No PNH patient in England, Wales and Northern Ireland is alone. All are represented and enabled to live to their full potential with PNHi". s an ultra-rare bone marrow failure disease. Our mission is "We provide support through educational resources and advocacy, as well as peer to peer contact." PNH is acquired (which means it is not inherited) and affects 1.3 people per million. Those living with this condition can require life long treatment to address symptoms such as extreme fatigue, breathlessness, pain and sometimes complications such as blood clots and kidney damage.

Donation summary

Total raised
£115.00
+ £16.25 Gift Aid
Online donations
£115.00
Offline donations
£0.00

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