Rebecca's fundraiser for The Esme Orike Foundation

Rebecca Behbahani is raising money for The Esme Orike Foundation

Tough Mudder London West 2025 · 10 May 2025 to 11 May 2025 ·

The Esme Orike Foundation was created in memory of our daughter, who tragically passed away from a rare cancer called CIC-DUX4 sarcoma. This disease affects children and young adults with low survival rates. The foundation funds research into rare cancers and provides financial support to families

Story

Thank you for visiting my JustGiving page - please consider to make a donation or to share the story of this incredibly important cause.

The Esme Orike Foundation was created in memory of the beautiful daughter of my friends Don and Charlotte, who tragically passed away from a rare cancer called CIC-DUX4 sarcoma.

Esme was a wonderful bright and incredible brave 13yr old girl, that made a selfless wish before her like was taken, that no other child should suffer as she had. Her parents and brother honour her memory by raising funds to research the sarcoma that took her life, for which there is no dedicated treatment.

Esme's Foundation is currently funding a 3-year research programme headed by Ross Okimoto (MD) at the University of California San Francisco, who specialises in finding treatments for the rarest of rare diseases. The research is focussing initially on CIC-DUX4 sarcoma, with the aim of developing treatments.

Please consider donating to honour Esme's wish and give hope to children and families facing this devastating disease.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Donation summary

Total
£306.44
+ £60.25 Gift Aid
Online
£306.44
Offline
£0.00

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