Rebecca's fundraiser for Ehlers-Danlos Society

Rebecca Lennard is raising money for Ehlers-Danlos Society

Shaving my head · 17 October 2025

The Ehlers-Danlos Society is dedicated to advancing and accelerating research and education in EDS and HSD. We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.

Story

I've been dislocating since my teens, without knowing why. When multiple doctors ask if I had EDS, I started to pay attention. And when I found out I'm one of approximately 31'000 people in Australia with the condition, and there's currently no treatment, I look at my kids and want a better future - one where they'll get help for this.

Sitting in a specialists' office, and two of them coming to say 'There's no treatment, have you tried pilates?' was disheartening. And I want to change that for the next person who walks into a doctor's office.

The Ehlers-Danlos Society is dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).

They support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.

At The Ehlers-Danlos Society, they are driving forward Care, Access, Research, and Education. If I can play a small part of this and raise some funds to further research, it would be amazing.

Every cent is appreciated.

Donation summary

Total
A$530.00
Online
A$530.00
Offline
A$0.00

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