My brother Ben, who had Williams Syndrome, sadly passed away this March at the age of 43. Ben was an absolute character! He would introduce himself to everyone he met, shaking their hand and asking what football team they supported. He had a natural affinity for music, and loved to sing, dance, and go to live gigs. He had no fear when it came to performing for others and his sense of humour and huge personality lit up any room he was in. Ben was always remembered and loved by everyone he met.

Although he embraced life with joy and curiosity, Ben also faced many health challenges. He had open-heart surgery at just two years old and spent much of his life in and out of hospital. He required full-time care, with my Mum being his main carer.

The Williams Syndrome Foundation is a small charity that supports people with Williams Syndrome and the families and carers who love them. I have many fond memories of our family joining Williams Syndrome holidays in Wales and attending meet-ups where Ben was met with lots of love and kindness.

In honour of Ben, and as a thank you for the incredible support the foundation has given over the years, we will be taking part in this year’s Santa in the City. Dressed in Santa costumes, we’ll be walking (and possibly running!) through London alongside hundreds of other Santas to raise money for the foundation and other charities.

Any donation—big or small—would mean the world to us. Thank you for helping us celebrate Ben’s life and support a charity that does so much for families like ours. 🎅❤️