In August of 2019, Debbie and Tony’s eldest son Jules was diagnosed with a malignant brain tumour, though they were to learn that this would be only half the battle. As a result of surgery, he developed a complex neurological condition common in up to 30% of children - Post Fossa Syndrome. The symptoms of PFS are immobility, lack of swallowing function, mutism and double vision, and Jules was a severe case. Steadily he made progress and was able to speak quite fluently, begin to walk independently, and complete his chemotherapy treatment, as well as GCSEs and A Levels, although ultimately did not recover from his original illness despite four years of incredible perseverance.

Jules maintained his mischievous sense of humour throughout, along with an utter absence of self-pity that was both humbling and inspirational.

We want to honour Jules by raising money for The Danny Green Fund, a small charity doing important work to fund research and support families affected by PFS. They supported Jules with physiotherapy over the four years and are the only charity of their kind.