My one year old son Ronnie is currently waiting for a life-saving stem cell transplant after being diagnosed with severe aplastic anaemia. His only cure is a stem cell transplant which involves chemotherapy.

He currently whilst waiting for his match, relies on weekly blood and platelet transfusions to keep him going.

As his bone marrow cannot produce the cells needed, he is extremely at risk to infections, and should catch an infection, he is treated for neutropenic sepsis. So to keep Ronnie safe, we have kept him in isolation since the beginning of March. No soft play visits, no nursery’s, no swimming, all the things he should be able to do for a baby his age.

Over the past few months, the Aplastic Anaemia Trust have been there supporting us, guiding us, educating us, and giving us hope when we’ve needed it most. They even create bravery boxes for children who will go through transplant.

As aplastic anaemia is a rare disease which most people have never heard of, and the trust does not receive government funding, we want to give something back to the trust to say thank you for being with us through this difficult journey, and ensure what we have received from the trust continues to be available to all families

Please help support by donating, sharing this post, or helping spread awareness.

If any local or larger businesses would like to support this journey through sponsorship, donations, raffle prizes, or even simply sharing this post, it would honestly mean the world to us.

Every bit of support helps raise awareness of aplastic anaemia and supports the incredible work the trust does for families like ours.

Because without organisations like the Aplastic Anaemia Trust, second chances at life simply wouldn’t be possible 💙

you can follow Ronnies journey via @register4ronnie