In December 2024 our 8 year old son - Max - underwent testing for Muscular Dystrophy. In March 2025 he was officially diagnosed with a nonsense mutation of Duchenne Muscular Dystrophy.

Duchenne muscular dystrophy is a severe type of muscular dystrophy predominantly affecting boys. The onset of muscle weakness typically begins around age four, with rapid progression. Initially, muscle loss occurs in the thighs and pelvis, extending to the arms, which can lead to difficulties in standing up. Wheelchair use will occur around early to mid teenage years. The disease goes onto target all muscles within the body.

Prior to diagnosis, our family knew very little about such a devastating disease. After a small amount of education and vast amounts of internet scrolling it became clear that Max was showing signs of the disease from a young age.

Since his diagnosis, Max has been an absolute superstar. He attends huge amounts of hospital appointments with a smile on his face and shows the doctors his cheeky side.

His sheer determination to not allow the disease to hinder him is admirable. He plays football for Chasetown Disability football Team, attends weekly swimming classes and plays cricket in the summer. He’s a Wolves season ticket holder and loves attending games. He also has season tickets for the Birmingham Bears / Phoenix, which his is major passion.

Unfortunately, there is currently no cure for this disease. Max is currently using 2 different medications on a daily basis and has to wear splints on both legs during the evening. This will be on going throughout his life.

Myself, family and friends are looking to complete the Jurassic Coast Ultra Challenge in May 2026 to raise money for charity - The challenge is to complete 100km within 2 days over extremely tricky landscapes.

If you are able to donate to the cause, I would be extremely grateful. It doesn’t matter how much you donate, anything and everything is welcomed and appreciated.

Our muscles matter.