I'm Rob. Sophia's Dad.

You're whole life changes when your baby is born. You make promises to be a better person. For them. To give them a life better than yours. Full of Love, Support and Joy.

I was willing and able to rise to those promises for Sophia. All that changed when we were brought into a room full of doctors and told that our baby would not survive this disease.

I couldn't keep those promises anymore.

I couldn't promise to bring her to all her soccer matches and coach her to be the best athlete she can be. I couldn't promise that I'd be there, healthy and able to walk her down the isle on her wedding day.

Instead, along with my partner Natasha, Ben the founder of this charity and all the other parents who've had to break promises to all their babies because of this cruel disease, I had to make new promises.

One of those promises is that I would do everything in my power to help fight this disease so that other parents wouldn't be forced to break promises to their little ones.

Please help me in raising funds for vital medical research into Alper's Huttenlocher Syndrome, the disease that took Sophia’s life for which there is currently no treatments or cure.

This crucial medical research will be facilitated through a three-year PHD research fellowship under the guidance of the charities medical advisors.

Thank you for supporting Sophia’s legacy in the hope that other children don't have to suffer as she did in the future.

Sophias Dad & Mama Bear,

Rob & Tasha X