For my birthday this year I’m raising money for Sequence ME and Long Covid, via Action for ME, because I think this study represents our best chance of understanding the causes and mechanisms of ME/CFS.

Sequence ME & Long Covid is a new research initiative designed to explore the root causes of Myalgic Encephalomyelitis (ME) and Long Covid using large-scale, long-read whole-genome sequencing. Building directly on the success of the DecodeME study, this project aims to unlock deeper genetic insights that could accelerate the development of diagnostics and future life-changing treatments. This proposed £20 million study will analyse the entire genetic code of 9,000 people with ME and 9,000 people with Long Covid.

Sequence ME & Long Covid, will be the world’s largest ‘long-read’ whole-genome sequencing study of any disease.

More info here: https://www.actionforme.org.uk/research-campaigns/our-research-work/sequenceme-long-covid/