Anyone who has a child diagnosed with Ataxia Telangiectasia (A-T) realises immediately and agonisingly that their lives will be changed forever and that the future holds a number of very difficult challenges for their child both physically and emotionally.

Founded in January 2012 by parents of a child diagnosed with A-T, Action for A-T understand what that feeling is like and is committed to making a difference to those affected by funding high quality medical research.

In the UK, research funding for A-T is extremely limited so Action for A-T was established to increase investment in A-T research and raise awareness of the condition.