ROSEMARY CHALK

Rosie's Heart Hike, raising awareness of Kawasaki disease!

Fundraising for Societi, The UK Foundation for Kawasaki Disease
£2,376
raised of £2,500 target
by 78 supporters
Donations cannot currently be made to this page
40km hike over the Yorkshire 3 peaks, 6 May 2023
With Kawasaki Disease in the spotlight during Covid-19, we URGENTLY need funding so we can continue supporting families, sharing trusted medical advice & getting Kawasaki Disease known! Help us protect children from this devastating disease!

Story

Back in January 2022 I needed life-saving open heart surgery due to catastrophic damage to my coronary arteries caused by Kawasaki's disease. My story is quite literally a one in a million, and a scary one at that but I am getting back to full heart health! Recovering in the last year has been tough but one year later I have now been given the all clear by my amazing cardiology team to push myself even harder and work towards the goal of completing the 3 Yorkshire peak hike. We will climb the 3 Yorkshire peaks in under 12 hours, ascending 1585m over the course of 24 miles, not quite a marathon, eek! I am in training and having goal is really helping my cardiac rehab.

Kawasaki Disease is an immune syndrome that normally affects children under the age of 5 and it is the leading cause of acquired heart disease for paediatric patients in developed countries. However, with treatment, few children have lasting cardiac damage...if it is caught in time. I want to raise money to increase the awareness of the disease by educating doctors so that no child develops the associated heart disease as well as supporting people with a history of Kawasaki Disease.

My diagnosis being missed aged 20 was no surprise as it’s exceptionally rare in adults, however, diagnosing the heart disease in my 30s has been a real journey. I was lucky enough to be seen by one of the world's leading experts in KD and he was the first person to recognise the diagnostic features in my heart. I have since read that KD should be considered for any young person with acquired heart disease and I want to get the message out there! Young dodgy ticker?…think Kawasaki!

About the campaign

With Kawasaki Disease in the spotlight during Covid-19, we URGENTLY need funding so we can continue supporting families, sharing trusted medical advice & getting Kawasaki Disease known! Help us protect children from this devastating disease!

About the charity

Kawasaki disease is the leading cause of acquired heart disease in children in the UK and the western world. It's time we changed that. We have an enormous task to do. But we are going to do it. TOGETHER we will. Join us and help us protect tiny hearts. You can make a difference. Awareness of this often pernicious disease is currently poor. Slow diagnosis and delayed treatment of Kawasaki Disease can cause serious, life-long health issues. Children affected by Kawasaki Disease have excellent chances of a good recovery with timely diagnosis and the correct treatment. At Societi we know that recognising Kawasaki Disease early is THE transformational opportunity to prevent what can be devastating effects from Kawasaki Disease. Kawasaki Disease has lots of symptoms in common with other childhood illnesses so it is often misdiagnosed - this means lifelong heart damage for too many children. Each year in the UK there are more cases of Kawasaki Disease than bacterial meningitis! Everyone would spot meningitis and know what to do, because of brilliant awareness raising work by MRT. We need everyone to recognise Kawasaki Disease too.

Donation summary

Total raised
£2,375.04
+ £327.75 Gift Aid
Online donations
£1,875.04
Offline donations
£500.00

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