Why CF?

Our little boy, Ruben, was born in June 2024 and spent 11 nights in NICU due to some problems with his digestive system.

A week after discharge, we got a phone call, telling us Ruben had Cystic Fibrosis, a life limiting condition, which we knew nothing about.

The Cystic Fibrosis Trust website and leaflets helped to educate us of the diagnosis and how it will affect not only his life, but our life as a family.

Ruben is looked after by a lovely CF team, who provide him with lots of care and also lots of support for us all, showing us how to provide the best care for Ruben to keep him well.

So what is Cystic Fibrosis?

Cystic fibrosis (CF) is a life limiting, genetic condition without a cure, which causes sticky mucus to build up in the lungs and digestive system. It affects more than 11,000 people in the UK. One in 25 of us carries the faulty gene that causes it, usually without knowing.

It dominates thousands of lives every day. You never get a day off when you have CF.

Cystic fibrosis comes with challenges, affecting our physical health, mental wellbeing and how we choose to live our lives.

Daily life involves multiple medications, vitamins and physio.

'Cystic Fibrosis Trust is the charity uniting people to stop cystic fibrosis. Our community will improve care, speak out, support each other and fund vital research as we race towards effective treatments for all. We won’t stop until everyone can live without the limits of cystic fibrosis.‘