Thank you for clicking through to this page and thinking about giving a donation, we really are very grateful.

As you probably know, my nephew Noah has a rare genetic condition known as ARIB-1B Related Disorder. My sister Caroline is part of a team of fantastic parents who have come together to form a Foundation to push ahead research into this condition, to seek treatments and to support other families.

This is FAR - Foundation for Arid1B research: https://www.arid1b.org

There are now 4 new ARID1B research projects, a natural history study and global conversations between researchers and scientists about routes to treatment.

All this has been raised by the families and supporters of FAR. We are very happy to be amongst these.

FAR - Foundation for ARID1B Research UK Fund - is a restricted fund under Prism the Gift Fund. Registered charity number 1099682

info@prismthegiftfund.co.uk