Addison’s disease is a rare lifelong chronic condition, which if not managed effectively can become critical. People with Addisons are steroid dependent, without the medication they will die. They have to wear critical alert bracelets in case of crisis and carry emergency injections ( which currently has to be mixed and made up by the patient before injecting, incredibly difficult when you are in crisis).

Our 18yr old son was diagnosed with the Disease after nearly losing his life to an Adrenal Crisis in Dec 25. He was a soccer Athlete living in America at the time but has now returned to the UK as he learns how to come to terms with the condition and how to manage it. His dream is to continue to play football at the level he was in the states, he would like to return. The challenges are seeing if his body will let him do this now due to the chronic fatigue it presents, as well as the muscle weakness and spasms it causes and worrying stress levels. Finnley needs to listen to his body and provide it with additional steroids (updosing) during any physical and mental stress. Essentially it’s a patient led guessing game based on symptoms.

On May 15, 2026, we will be hosting a special fundraiser event, "an evening of entertainment, the Full Monty / Drag Queen Kiki Inferno, Toto Theatricals and international DJ HollyJay.

We want to raise awareness and funds for this vital cause, supporting further medical research and training around Epi pen provision and monitoring of hormone levels so that patients can effectively treat theirselves rather than guessing.

Our goal is to raise £6000 at this event to support the incredible work that ADSHG does.

Every contribution, no matter how small, can help bring us closer to a future where individuals with Addison’s disease receive the medical recognition and support they deserve.

Tickets are on sale for the night from the 1st March. This page is for those who can not attend but wish to show support regardless. Contributing and helping us get to that £6000 mark.