When I was diagnosed with TTP in 2022 it happened very quickly and as we were told it was a rare blood disorder, it was a bit overwhelming. On the day I was diagnosed, in the morning I was teaching and by the evening I was in intensive care at Addenbrookes hospital having plasma exchange.

Learning more information about it helped me to understand it and made it easier. The TTP Network helps patients and families get access to information and is the UK’s primary support group for patients. I also want to thank anyone that has ever donated blood, as having plasma exchange saved my life and even though I can no longer donate, please think about whether you can donate.

Please join us for a walk around Whitlingham Country Park (we will do 2 laps of the lake which is about 7km) at 9am on Sunday 27th September to raise money for the TTP Network & spread awareness of TTP. Even if you are unable to walk with us, please donate if you can.

If you’ve never heard of TTP:

TTP is a rare, life-threatening blood disorder where small blood clots form throughout the body, blocking blood flow to vital organs such as the brain, kidneys and heart.

The clots use up platelets, which can cause easy bruising and bleeding. TTP can also cause red blood cells to break down, leading to anaemia.

TTP usually develops suddenly and can last days, weeks or sometimes months. Without treatment, it can cause serious complications, including organ damage, brain damage or stroke.