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Thanks for taking the time to visit my JustGiving page. My Niece Miss Phoebe Rose suffers with Sanfilippo Syndrome nicknamed as child dementia, a rare cruel incurable life shortening disease, a disease that impacts 1 in 70,000 births. At present there is no known cure for Sanfilippo Syndrome. We all know the cruelty of dementia which can happen in old age, but to see this happen to a child so young is devastating. Phoebe and her family receive incredible help from Francis house, a charity there to help children with life limiting conditions and their families, Francis house provide endless help and respite for families as well as end of life care for those final days.
My self, Simon and Stan and Chloe as a team we will be raising money for Francis house by taking part in ‘Born Survivor’ a military organised challenge over 10k with 30+ military obstacles round Capesthorne hall in Cheshire. Now don’t be fooled, this isn’t just a 10k run with a stunning back drop, this is a grueling challenge designed by the military and so We are asking for people to sponsor us and raise money for this incredible charity.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.
Thank you
Sam Self
