Story
Pachyonychia Congenita. Quite a mouthful and likely one you’ve never heard before, even if you’re a doctor.
This rare skin disease has only been reported by 10,000 people across the world - believe it or not, approximately 10 of them (0.001% of global sufferers!) are within my close family. The symptoms of this disease, known as PC, primarily show in the nails and skin, with those affected developing layer upon layer of painful calluses and blisters on the soles of their feet and hands.
I have seen firsthand how this disease debilitates. Casual summer walks cut short because the sufferer can no longer stand; hours spent in high street shops trying to find shoes that the wearer can tolerate beyond a few hours; countless trips to doctors and podiatrists who shrug and scratch their heads. Not to mention the extra costs accumulated through tonnes of creams, painkillers, and antiseptics - none of which bring relief.
I am running the Windsor half marathon for those whom long distance running will never be possible as a result of PC. Anyone who knows me well knows I’m no runner, but I am happy to become one in order to bring my family one tiny step closer to a cure.
All funds raised will go to the Pachyonychia Congenita Project Europe (PC Project Europe), which does such an important job not only leading the world’s research on finding a cure and bringing awareness to this disease, but also creating a community where sufferers can be seen and heard.
Any support is deeply appreciated! xx