We are raising £50,000 in memory of Sam, who was a happy, healthy 5-year-old before FIRES took his life after a 7-week battle in intensive care. There is no cure, and research is critically underfunded.

The cause of FIRES is still unknown and there is no cure. However, it is thought to be a rare immune reaction to a routine virus. FIRES can happen to any child - striking without warning, attacking healthy children with no history of epilepsy. It triggers explosive, aggressive seizures that are exceptionally difficult to stop, and which frequently cause catastrophic brain damage.

One in five children do not survive, and those who do are left with significant neurological disabilities.

Your support will help fund vital research, raise awareness, and bring hope to families facing FIRES. Every donation brings us closer to life-saving treatments and, ultimately, a cure.

Please donate and share. Let’s fight for a future where no child is lost to FIRES.

#FindACureForFIRES