Thanks for taking the time to visit our JustGiving page.

We were recently contacted by a brother of one of our former pupils, Lucia Lowe. At 11 years old, Lucia was diagnosed with juvenile Tay-Sachs which is a rare and devastating genetic condition that affects the nervous system and causes progressive neurological decline which typically reduces life expectancy to teenage years. The disease has had a profound impact on Lucia since being diagnosed in 2010 where she has lost her ability to communicate, eat, and walk unassisted, among many other things, requiring constant, around the clock care. Lucia is remembered fondly by staff for her cheekiness and her infectious laugh and smile.

Tay-Sachs is a heartbreaking condition with no cure, and for Lucia, and many others with the disease, it provides an uncertain future. In April, Lucia’s brother Loukas and Lucia via an assisted wheelchair will be running The London Marathon for the Cure and Action for Tay-Sachs (CATS) Foundation.

By running the marathon, Loukas and Lucia aim to raise £10,000 for CATs and we would like to help them reach their target. Next half term, Nursey, Reception and Year 1 will walk a lap of the school field each day for 26 days and from Year 2 onwards the children will either run or walk a mile a day for 26 days each lunchtime. We ask for the children to be sponsored in doing this. Each child will bring home a sponsor form and you can either collect donations and pay via your Parent Pay account or you can donate directly onto our Just Giving Page

If you would like to track Loukas and Lucia’s progress you can do via their Just Giving page https://www.justgiving.com/page/loukas-lowe-1734465616858

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.