Some of our close family and friends know that our youngest has recently been diagnosed with Hypermobile Ehlers-Danlos Syndrome, and the battle we have had to get her diagnosed. Ehlers-Danlos Society raises awareness of this rare genetic disorder which a lot of the time is misdiagnosed for something else (which we as a family have been affected by). Emily is a beautiful, feisty 3 year old who will not be affected by this and her strength will remain throughout her life whilst she deals with this in whatever way it presents.

This diagnosis has played a big part of mine and my family’s life for a while now and I wanted to do something following my skydive last year. Now, people who know me, know I don’t run….so this half marathon is a bit of a big deal! Pushing myself and setting an example for both my girls. I know it’s a tough time at the moment for a lot of people but any donation will be massively appreciated, not only for this cause but also holding me accountable!