Sarah's fundraiser for Little Hero

Sarah Davies is raising money for Little Hero
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Wye Valley Tunnel Run Marathon · 16 July 2023

We launched Little Hero in 2019 after our little boy Will died following a 9 month battle with an aggressive version of a brain tumour called Medulloblastoma. Despite the devastating impact this had on our family, we were inspired by Will and his amazing fight and wanted to continue his effort to support other families. We have the following charitable aims: To fund critically needed research into new treatments for childhood brain tumours. To support other UK families facing a childhood cancer diagnosis. Our efforts have two main programme in flight: We are creating ‘Will’s Woodland’! A retreat in Devon for families on a childhood cancer journey to be able to take a free break in safety and seclusion away from a hospital setting to find time to just be as a family. This is amazingly important as these vital months of life are often dominated by a hospital environment. We are funding INSTINCT 2, a new 5 year research programme into developing new treatments into childhood brain tumours led from Newcastle university. This is the major UK effort in discovering new potential clinical treatments and comes at a critical time where new genetically tailored or immunotherapy treatments are due to emerge alongside more traditional (and sadly only partly effective) chemo/radiotherapy.

Story

Brain tumours kill more children than any other cancer and are the single biggest cause of childhood deaths.

I am raising money for a wonderful charity called Little Hero who support families experiencing a childhood cancer journey and funding much needed research into new primary treatments for the most aggressive paediatric brain tumours.

When children are undergoing treatment, they’re often susceptible to infection, so finding things to do is particularly tricky. They can spend a lot of time in isolation due to a compromised immune system and never-ending infections. Some close friends are on this journey. Their son is 6 years old and undergoing 18 months chemotherapy. They have been able to spend time at Will’s Woodland retreat in Devon where they enjoyed special time away as a family. I would like to support this cause as I know the difference it has made to them.

Donation summary

Total
£2,215.01
+ £325.00 Gift Aid
Online
£1,715.01
Offline
£500.00

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