Duchenne Muscular Dystrophy (DMD) is a genetic disease that causes muscle weakness and wasting. Children born with DMD have a fault, known as a mutation, on their dystrophin gene. Genes are smaller sections of the body's DNA. They are the instructions that make our bodies work. For people with DMD, the fault on the gene means that they cannot produce dystrophin, which is a protein that protects muscles. Without dystrophin, muscles get damaged more easily and so muscle strength and function is weakened

DMD almost always affect boys, and is typically diagnosed in childhood. There are around 2,500 patients in the UK and an estimated 300,000 worldwide. It is classified as a rare disease. Today there is no effective treatment or cure.

Will Taylor was diagnosed with DMD in June 2014 at the age of 4. Will is now 13 years old.

In August 2023, Wills Mum and Dad - Sue and Sam, and a group of friends, will attempt to complete a long distance Ironman triathlon called the IRON WILL CHALLENGE