Story
In just under two weeks, Janet and I are running the Worcester half marathon to raise money for Duchenne UK, a charity whose mission it is to give support, find treatments and one day a cure for Duchenne Muscular dystrophy. They connect the best researchers with industry, the NHS and families to advance and accelerate every stage of drug development.
DMD is a rare and life limiting muscle-wasting condition effecting approximately 2,500 people within the UK. It is the most common and severe form of muscular dystrophy. Diagnosed in childhood, it mainly affects boys.
The current expectation for people with Duchenne is that they will slowly loose the use of their arms and legs leaving them wheelchair dependent between the age of 8 and 12. Their life expectancy is grossly shortened due to respiratory and cardiac failure. There is no cure.
All funds donated will go to Duchenne UK to help support their research.