Two years ago (2023), a syrinx was discovered during a preventative scan. It wasnt until 1 year ago that I became symptomatic and I have been living in a new reality. The symptoms I experienced ranged from extreme weakness, brain fog, balance issues, burning sensations on my skin, extreme sensitivity to temperatures and constant twitching all over my body.

When I went looking for answers and options, there were few to be found. Seeing that syringomyelia occurs in 8 in 100,000 people, its as an extremely under researched and even fewer treatment options. One of the few organizations that gave me some answers and guidance was ASAP.

I'm fundraising for ASAP to support vital research and provide resources for those living with syringomyelia and related disorders. These complex neurological conditions are often misunderstood, leading to delayed diagnoses and limited treatment options. Patients can suffer from chronic pain, mobility issues and life-altering symptoms. Your contribution helps advance understanding, improve care, and bring hope to countless individuals and families affected by these conditions. Together, we can make a difference.

Thank you for your support!

With love,

Sean