Fundraising is a great way to support our small charity. Every penny raised will go towards providing information and support for patients and their families after a TTP diagnosis. TTP is very rare and patients and their loved ones can feel isolated.

Hi everyone 💜 long post!!!

I wanted to share something with you all, some of you already know but some don't. Over the past few weeks I have been very unwell, I was in hospital for 2 weeks unconscious for most of one of them. After A LOT of tests I have been diagnosed with a rare, life-long and if untreated life-threatening blood disorder called TTP (Thrombotic Thrombocytopenic Purpura).

TTP is extremely rare – affecting only about 6–10 people in every million, Yep I am special... It happens when blood clots form in small vessels throughout the body, which can cause serious complications if not treated quickly affecting vital organs including the brain.

Absolutely no idea why or what caused this, they think maybe a virus which caused my own immune system to go into overdrive and attack myself!!! I'm aware of how dramatic that is...shut up! 😑

The good news is that I’m slowly on the mend and feeling stronger every day. 🙏 I am really keen to raise awareness of this condition, since so few people (myself included, until now) have ever heard of it.

I’m looking into ways to help raise money for TTP research, so we can support better, have understanding, treatments, and hopefully improve outcomes for others living with this condition.