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Sharon 's fundraiser for HHT Ireland

Sharon Gregg is raising money for HHT Ireland
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HHT Ireland Moveathon 2023 · 10 June 2023 ·

HHT is a rare blood-vessel disorder which can be fatal if left undiagnosed/untreated. HHT Ireland works tirelessly to raise awareness of HHT & support families living with HHT. 90% sufferers go undiagnosed - this has got to change. Help us to make that change!

Story

I’m a patient advocate with HHT Ireland and I’m walking 10km on June 10th to raise funds and awareness for this rare blood vessel disease - HHT. Constant and unexplained nosebleeds being a main symptom along with red spots (Telangiecstasia) on the skin.AVM’s appearing in the gastric tract ,bowel,lung,brain and uterus causing underlying life threatening health issues … The generous funds help us to continue to raise awareness along with our patient support and helplines,with every penny going towards making the path for diagnosis much easier, as 90% of people are undiagnosed. So it’s our mission to find these families and get them tested and supported … Thank you everyone for your support - every little helps, and in return I will do the walk ❤️

Donation summary

Total
£1,739.09
Online
£1,739.09
Offline
£0.00

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