Sharon 's fundraiser for HHT Ireland

HHT Ireland Moveathon 2023 · 10 June 2023 ·
I’m a patient advocate with HHT Ireland and I’m walking 10km on June 10th to raise funds and awareness for this rare blood vessel disease - HHT. Constant and unexplained nosebleeds being a main symptom along with red spots (Telangiecstasia) on the skin.AVM’s appearing in the gastric tract ,bowel,lung,brain and uterus causing underlying life threatening health issues … The generous funds help us to continue to raise awareness along with our patient support and helplines,with every penny going towards making the path for diagnosis much easier, as 90% of people are undiagnosed. So it’s our mission to find these families and get them tested and supported … Thank you everyone for your support - every little helps, and in return I will do the walk ❤️
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