Shelene's fundraiser for Muscular Dystrophy UK

London Marathon 2026 · 26 April 2026 · Start fundraising for this event
My family is affected by a type of Muscular Dystrophy called FSHD. There is no cure, there are no treatments available, and it is hereditary. I've watched it slowly and painfully take away my Father's mobility, as it did his father's and several of his siblings'.
In November of 2023, I received confirmation of my own diagnosis of FSHD. Being an avid recreational runner, I was devastated. But I promised myself I wouldn't waste my mobility, or my time. I remind myself every day how lucky I am to be able to do all the things I can do.
At the time I was diagnosed, I had run 2 marathons. I've since ran 4 more! Staying active as long as possible has been my primary goal. But now I'll have some additional goals - to run the London Marathon in honor of my Dad, and raise as much money for MDUK as I can.
Huge strides have been made in FSHD research, and there is a very real possibility of a treatment or cure in the near future. Raising money for MDUK is something I can do to help that forward progress, and you can help with a donation of any size. Every bit helps!
I am so honored to run for #TeamMDUK and #TeamOrange 🧡🧡🧡 Thank you for reading my page, and for any contribution, big or small, that you can make. It means more than you know. Let's do this!
Muscular Dystrophy UK is the charity for the 110,000 children and adults living with muscle-wasting conditions in the UK. There's currently no cure, and it many cases, it limits lives. MDUK do vital work in funding pioneering research into treatments and cures as well as providing vital information, advice, resources and support for individuals and families living with these conditions.
All donations, big or small, are greatly appreciated. Thank you!
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