Team: Sophie, Faye, Diane, Nigel, Dan, Steve, Ben & Tom

Our beautiful little boy, Theo (TT), has Rubinstein-Taybi Syndrome (RTS), an incredibly rare genetic condition that affects around 1 in every 125,000 people.

Because it is so rare, there is very little research, limited awareness, and many families face an uncertain journey after diagnosis. The RTS Support Group is a lifeline, providing support, information, family events, and helping to fund research so that children like Theo can have a brighter future.

If you’ve ever met TT, you’ll know just how special he is. He has the biggest smile, the kindest heart, and a determination that amazes us every single day. He faces challenges most of us will never have to think about, yet he continues to bring so much happiness to everyone around him. We are so proud to be his family.

On Saturday 26th September 2026, our team will be taking on the Chiltern 50 Ultra Challenge, with members walking & running distances from 10km to 50km to raise money for this incredible charity.

Tom is taking on his own unique challenge. Throughout the 30 days of September, he will complete an incredible 30,000kg of log presses to raise even more money for the RTS Support Group.

Every pound raised will help the charity continue to:

* Support families living with RTS.

* Raise awareness of this rare condition.

* Improve information and resources for newly diagnosed families.

* Fund research to better understand Rubinstein-Taybi Syndrome and improve the future for those affected.

If you’re able to donate, no matter how big or small, you will be making a real difference. Every donation helps give hope to families like ours and brings us one step closer to a better understanding of this rare condition.

Thank you so much for supporting our team, supporting Theo, and helping us make a difference. We truly appreciate every single donation. 💙