Our youngest son Frankie was diagnosed with myelomeningocele spinabifida hydrocephalus and chiari 2 malformation at our 20 week scan. Claire House have been so so supportive and have been there for us from the moment we found out to now. They are such a wonderful charity and the work they do is so amazing, helping so many beautiful families. So I've decided to do a charity sky dive in september for them and I'm trying to raise as much money as possible as a way of saying thank you.

Imagine hearing the worst possible news as a parent - that your child is seriously ill and not expected to live to be an adult.

Claire House helps parents create wonderful experiences for their children and bring back a sense of normality to family life. By providing specialist nursing care and emotional support, Claire House helps families smile again when life couldn’t get any tougher.

Your money can make a real different to a family who urgently need more support.