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Steve's fundraiser for George and the MVA Society

Stephen Garvey is raising money for MVA Society

Walking from Hadrian's to Rome

MVA is a devastating ultra-rare disease with no known treatments—yet. Your donation changes that, funding vital research toward a cure and supporting families who have nowhere else to turn. Every pound you give brings us closer to making treatments possible. We can't do this without you.

Story

Mosaic Variegated Aneuploidy (MVA) is an ultra-rare genetic condition affecting fewer than 50 people worldwide. One of the brave few just happens to be a child at the school I teach at.. George is in Reception Class, meaning he is currently four. We share the same birth date (I am a little older!), so we have this in common. This condition is so rare that there is just no funding available. It is a daily struggle for his parents to take care of his needs. With greater research, George's future can have greater certainty.

So I thoght I would take on two challenges to raise a few thousand pounds for pioneering research. Walk one is Hadrian's Wall in May; the second will be a 100km walkalong the Italian Comino trail into Rome this summer. Any support you can offer would go a long way to giving George a hopeful future.

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Donation summary

Total
£335.00
+ £83.75 Gift Aid
Online
£335.00
Offline
£0.00

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