The Wolf Hirschhorn Syndrome Trust was set up by our parents Michael and Christine Hilder to support the children and families of those with Wolf Hirschhorn Syndrome in the UK.

Steven was born in 1978 and was one of the first in the world to be diagnosed with WHS. He was just a few days old when he was diagnosed. and it took our parents a few years to find other families caring for someone with the same syndrome. Out of those few early connections has grown a network of support for those with WHS. The UK charity now supports hundreds of families and carers around the country as well as being the inspiration for groups around the world.

The Wolf Hirschhorn Syndrome Trust provides advice, produces newsletters, awards financial grants and organises national and regional meetings. Its aim is to promote awareness and understanding of this rare genetic condition by providing information to the wider community and funding research.

By donating to the trust you will be helping to continue the work our parents started, that is so vital to WHS families.

With thanks - Susan and Katie x