Our son Will has a rubbish muscle wasting condition called Duchenne Muscular Dystrophy, it means that his muscles can’t repair themselves, so they stop working properly. For Will, this makes many physically activities really difficult, and has a huge impact on his life.

Since Will was diagnosed in 2014, our family and friends have taken on a number of challenges to raise money for the Muscular Dystrophy UK Duchenne Breakthrough Research Fund, which funds research into treatments for the condition

This year - 2023 - we are taking on our most ambitious challenge yet. A long distance - Ironman distance - Triathlon, set in the mountainous terrain of the Lake District, between 31st August and 2nd September. That’s 2.5 miles/3.8 km of Swimming; 112 miles/180 km of bike riding; and 26.2miles/42.2km of running over 3 days.

Planning and participating in these challenges is our way of fighting back against Duchenne on Will’s behalf. Will is totally involved in the planning and execution of the event, as part of the support team, alongside his sister Beth and brother Barney.

You can follow the Iron Will challenge through our Facebook page: https://www.facebook.com/ironwillchallenge

Please donate if you can

Thank You

Sam & Sue

Duchenne Muscular Dystrophy (DMD) is a genetic disease that causes muscle weakness and wasting. Children born with DMD have a fault, known as a mutation, on their dystrophin gene. Genes are smaller sections of the body's DNA. They are the instructions that make our bodies work. For people with DMD, the fault on the gene means that they cannot produce dystrophin, which is a protein that protects muscles. Without dystrophin, muscles get damaged more easily and so muscle strength and function is weakened

DMD almost always affect boys, and is typically diagnosed in childhood. There are around 2,500 patients in the UK and an estimated 300,000 worldwide. It is classified as a rare disease. Today there is no effective treatment or cure.