Story
Thanks for taking the time to visit my JustGiving page.
This page is to raise money for the Coventry support group and the Pituitary Foundation , The Pituitary Foundation gets no government funding so running these groups all over the UK is done totally on fundraising alone. These groups help so many people with Pituitary Conditions.
Having a pituitary condition can be very isolating and having a place to go and get information and meet other people going through something similar really does help. This is why I now run the Coventry Support group as when I had Cushing’s Disease there wasn’t a group in Coventry and I know this would of helped me so much , being diagnosed with a Pituitary condition is very scary and you can feel so alone, also there is so much information you need to find out yourself about your condition as Pituitary Conditions are rare and therefore to get a better understanding of your condition you really have to look into it. These groups now provide a safe space for patients to come to and share their own experiences and learn from each other . Also it’s a great place to get a better understanding of your condition . The group has now 50 people on the mailing list and so many people attend each group. I try get different speakers to teach us more anbout the different types of Pituitary Conditions and how to also take care of yourself , with mindfulness or how to help manage your symptoms and recovery, I also host get togethers and fundraisers , all of this helps so much and I feel so grateful I get to be part of this.
This is my story and why I run these groups and understand how important they are - My story
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