Suzanne's fundraiser for Action for BPAN

Suzanne Bainbridge is raising money for Action for BPAN
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London Marathon 2025 · 27 April 2025 ·

Action for BPAN was created by two mothers who's daughters have been diagnosed with this rare Neuro-degenerative condition. As the UK's first charity for BPAN we want to fund the vital research for a cure or treatment and give a voice to this rare community of wonderful children and parents.

Story

I'm running the London Marathon for a charity that is very close to my heart.

Action for BPAN is the first UK charity focused on funding research for a cure or treatment for Beta-propeller Protein-associated Neurodegeneration (BPAN). BPAN is a rare neuro-degenerative condition for which there is presently no cure or treatment.

The charity was created by two amazing mothers whose daughters have both been diagnosed with BPAN. Its mission is to make a lasting impact in the lives of people affected by this devastating condition by raising awareness and funding vital research. Please check out their website at www.actionforBPAN.co.uk.

Feeling very nervous but hopefully it will be all right on the day. Any support you are able to give would be massively appreciated.

Suzanne x

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Donation summary

Total
£5,305.00
+ £1,162.50 Gift Aid
Online
£5,305.00
Offline
£0.00

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