Story
On Sunday 16th June, I will be taking on the Forth Rail Bridge and abseiling 165ft to help fundraise for the Lauren Currie Twilight Foundation!
The LCTF was established in 2010 by the parents of Lauren Currie, who sadly passed away, aged just 15, due to Vasculitis which was only diagnosed in the 48 hours before her death.
In the madness that was 2020, my health deteriorated rapidly and I received my diagnosis of Vasculitis. Over a few months, I went from a perfectly healthy person, to being hospitalised and critically ill with end stage Kidney Failure caused by vasculitis, which also affected my lungs, liver, nerves, and joints.
It was a terrifying experience, however I am so grateful to my medical team who were able to recover my kidneys and put me into remission. The Lauren Currie Twilight Foundation does amazing work for all those affected by Vasculitis, they have been a support to my throughout my diagnosis and recovery. I really want to be part of giving something back by joining in their fundraising efforts.
Most people may not have heard of Vasculitis. It is a group of conditions affecting the blood vessels, with several variants affecting different parts of the body. Some variants are fatal if undiagnosed - but diagnosis can be complex as many symptoms can also be stand-alone conditions (like arthritis, asthma, tiredness, joint pains, headaches). Connecting the dots is vital for diagnosis.
The charity is not government-funded and relies on donations and fundraising to provide patient support (support groups, counselling, respite and wellbeing courses); raise awareness of Vasculitis variants (GP awareness materials, public awareness); fund PhD research; provide education through webinars.
To read more about what we do, visit:
www.thelaurencurrietwilightfoundation.org
Thank you! 🖤♥️
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