Thanks for taking the time to visit our JustGiving page.

Our daughter, Stefanie, was diagnosed with Mastocytosis in 2024 after 5 years of various symptoms and seeing multiple doctors, who struggled to know what was wrong.

Mastocytosis is a rare condition where the body produces too many mast cells which form part of your immune system. In addition to numerous symptoms, people with mastocytosis have an increased likelihood of an anaphylaxis reaction, with or without an actual allergy so it is unpredictable. Stefanie carries 2 epipens with her at all times, and she us now under a specialist in London.

The UK Mastocytosis Support Group have been a lifeline for us with both information and support. There is virtually no research into this condition in teenagers. They provide information to individuals and medical professionals. As a rare condition, most people have never even heard of it, including a lot of medical professionals, and funding for research is very limited.

In July, Robert, Stefanie's brother, and I will be walking and camping Peddars Way in Norfolk over 4 days and 3 nights. It is a 46 mile (74km) national trail that runs from Knettishall Heath in Suffolk to Holme-next-the-sea on the north Norfolk coast. We will be carrying all our gear, so will only bring the bare essentials. I'm sure it will be fun, but I'm not a fan of camping, although Robert can't wait.

Please share this JustGiving page with as many people as possible as every little helps.

Thank you in advance for any donation you can make.

Tanya And Robert