Today is Rare Chromosome Day and this year we are celebrating all things Ellouise, as we recognise her for the true superhero she is!

Team Thompson are taking part in the Superhero Tri on 12th August. This will involve supporting Ellouise to complete an open water Swim of 400m, 10km Bike ride and finally a 2.5km Push/run.

We are fundraising for Unique, a truly amazing and unique charity who offer support and information for all families affected by chromosome conditions. For those whose conditions are very rare, like Ellouise, Unique are often the only source of information, not just for families but also medical professions. We need to help ensure they can continue this incredible work. Alongside this they also put families in touch with each other to offer first hand experience and guidance. This has allowed us to build a network (albeit a very small one!) of families affected by similar conditions to Ellouise.

The event is also significant for us as we will be meeting 2 other 3p25.3-26.3 Heroes and their amazing sidekicks, very exciting times!

Please support us if you can

Thanks

Team Thompson

Rare Chromosome and Gene Disorder Awareness Day ('Rarechromoday') June 22nd 2023 is a day to celebrate and inform and raise awareness about the daily challenges faced by those affected and their families.

Even in this day of vast medical knowledge and technological advances, these conditions remain relatively poorly understood. Unique are a small charity who help families come to terms with the diagnosis and begin to understand what it means.

Please help Unique support even more families, provide them with more information and facilitate more research so we can ensure more families get answers to their questions and can face the future with some hope.