Team Albi💙🦋

This year on 21st June -Team Albi are taking on the challenge of walking the full length of the Taff Trail (55miles) in under 24 hours to raise funds for CURE EB. Whilst other members of the group will walk, cycle or run

Team Albi consists of a big group of family and friends all wanting to support this incredible charity which raises vital funds for research projects and clinical trials with the goal of finding a cure for those living with Recessive Dystrophic Epidermolysis Bullosa (RDEB)like Albi.

100% of the funds raised will go to research

Our Gorgeous Grandson Albi was born with Severe Recessive Dystrophic Epidermolysis Bullosa (RDEB - GS) in August 2023. This is an extremely rare and incredibly painful genetic skin disease; the slightest knock or friction caused by normal everyday activities will cause the skin to blister and/or shear. To protect his butterfly skin, Albi undergoes 2 hours of protective bandaging everyday to try and minimize further wounds & infections. EB effects Albi both internally and externally meaning blisters also form on his eyes (by the wind just blowing ), mouth and esophagus, where he has already had 2 operations . Without a cure those with severe forms of EB like Albi are at a high risk of developing an aggressive form of skin cancer - Squamous cell carcinoma (typically in their 20s) which is usually fatal. Being such a rare genetic disease raising awareness and helping to fund research and trials is critical to stop the pain that Albi and others born with EB live with every day.

As a family we cant not thank you enough for the continued support for Albi and all EB suffers. We are so grateful to everyone also joining us on this challenge - there's still time to sign up.