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Various members of Alex TLC staff and volunteers are taking part in a Walk 'N' Roll challenge to reach a combined distance of 750km in September!
Please support us and help us to raise vital funds this Leukodystrophy Awareness Month.
Leukodystrophies are rare genetic disorders that mainly affect the white matter of the central nervous system (ie the brain or spinal cord). They affect people of all ages and backgrounds, most notably children. Leukodystrophies are usually degenerative, causing symptoms such as impaired mobility, vision, speech and hearing, incontinence, inability to swallow, and loss of cognitive skills. In many cases, this sadly means a reduced or limited lifespan.
There are over 100 known types of Leukodystrophy identified to date, including some so rare they only affect one or two individuals.
Alex TLC is the only charity in the UK that provides invaluable support for anyone with a leukodystrophy, their families, and carers.
Your donation will mean the world to Alex TLC - Thank you!