With the fantastic news that Freddie hit 5 years clear this year, we decided we should celebrate in style with a family fundraiser!

We have done many fundraising events over the years, but we have never actually done one of the big events that so many others have done for us, so here we go!

First up we have Freddie’s dad, Will, doing a skydive on 18/10 - that’s jumping 10,000 feet out of an aeroplane 😮

Secondly we have Me - Freddies Mum, Nicole, doing the London Landmarks Half Marathon - thats 21km (13 miles) and I’m not a runner!

Last up…after watching me attempt 5k runs, Freddie’s brother - Albert, wanted to do some running too and will be taking part in the Blenheim 1 mile run!

For those who don’t know Freddie’s story - At just six years old, he was diagnosed with metastatic (in more than one place) Ewing Sarcoma, which is a form of bone cancer.

He went through 10 months of gruelling, intense chemotherapy and radiotherapy treatment, and is thankfully showing no signs of disease on his many scans and checks he has to monitor his progress.

Freddie was a shadow of his former self through treatment…he had countless blood transfusions, platelet transfusions, illness, fevers, blood tests, pain, operations and had to be brave way too many times. He now suffers the repercussions of this treatment with hormone problems (one of which can be life threatening) where he will be on medication for life, eye sight problems and back issues as well as other more physical issues. This is because some of the drugs used are more than 40 years old, and haven’t advanced. This is because of lack of funding, and lack of research. The majority of bone cancer patients are children, and the prognosis for this awful disease is shocking. 50-80% of people with metastatic disease are likely to relapse, and there is no second line treatment if they do….. and too many patients heartbreakingly do not survive after first line treatment. Not only that, but the larger cancer charities and the government barely give any funding to bone cancer.

This is why Freddie’s Future was set up under the Bone cancer research trust - to get better treatments for patients like Freddie.