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Team Eben takes on the Cleveland way! ⛰️

Helen Naylor is raising money for Muscular Dystrophy UK

25mile trek along the Cleveland way · 6 June 2026

A Wish For Eben
Campaign by Muscular Dystrophy UK (RCN 205395 (England & Wales), SC039445 (Scotland))
Thanks for visiting our A Wish For Eben fundraising page, and for your interest in supporting our family to find viable treatments and cures for Ullrich Congenital Muscular Dystrophy (UCMD)

Story

This years challenge explores the beauty of the Cleveland way, our incredible group will take on a 25 mile loop starting in Great Ayton, climbing roseberry topping across to Captain Cooks monument, through Kildale, Battersby, Rosedale Rail track, Lyke wake, Great Broughton before returning to Great Ayton - and the biggest challenge is we’ll be attempting this in a day!

We’re raising money for a very special boy Eben, who was diagnosed with Ullrichs Congenital Muscular Dystrophy (UCMD)aged 2 and a half. Which means Eben’s muscles are unable to produce Collagen IV protein.

UCMD is a severe, life-limiting, progressive condition that leads to extreme muscle weakness. It affects the skeletal muscles which impacts areas like walking, Eben is unable to walk or stand and uses a wheelchair, he is also likely to face respiratory issues, muscle contractures and scoliosis later in life. Treatments and equipment are available to help manage these but sadly, there is currently no cure for UCMD. however there is hope in the form of promising research being done in this area.

80% of funds raised will go towards UCMD research and 20% will be kept in a welfare account for Eben's future needs.

Donation summary

Total
£3,251.99
+ £764.91 Gift Aid
Online
£3,251.99
Offline
£0.00

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