Story
Two years ago, in a pub in Bristol, the Mongol Rally emerged as a topic of conversation. One year later, on a whim, we had booked our place. One year after that, we realised what we had naively signed ourselves up for. 11,000 miles, in a cramped 2008 VW Fox, with little-to-no mechanical experience, we were set to voyage from London to Oskemen, Kazakhstan. As part of our noble quest, we are raising money for Epilepsy Society.
Amelia Roberts was a great family friend and my Dad’s beautiful Goddaughter. She tragically died suddenly at home on the 20th December 2018 aged 21.
Around her 16th birthday she developed epilepsy in the form Petit Mal absence seizures.
Supported by her dedicated medical team, she began valiantly to tackle her condition using various combinations of prescribed drugs to control her fits….to no avail.
Even though these powerful drugs affected her energy levels it didn't deter her from trying to lead a normal life. In her last year she started experiencing shocking Grand Mal seizures during which she lost consciousness.
She was funny, plucky, beautiful and very brave.
Amelia found support from the Epilepsy Society who carry out important research and guidance to this awful affliction. She made the decision to donate her brain for research.
The Roberts’ family have raised over £550,000 for the epilepsy society in Amelia’s name.
Please do send something, every penny will help tackle this awful condition!
Lots of Love,
Nick, Huck, Alec
