The Tilly's Run Brighton Marathon for KEEP ME BREATHING
Luke Tilly is raising money for KEEP ME BREATHING
Story
The Tilly's Run Brighton Marathon - For Keep Me Breathing.
When the call comes through from some very good friends and even better humans, who have been through more than I could ever imagine in the last few years.
Wrestling with rare conditions directly impacting the life of their beautiful daughter (such as CCHS, which is a condition that causes children to stop breathing when they sleep) and multiple operations.
And the ask is, would you run a MARATHON to support....in 3 months...the answer is only ever going to be YES!
Because I know;
If you want to go fast, go alone. If you want to go far, go together
I roped in my Dad and Brother for company, who both said yes without a second thought. Thank you Gentlemen!
The charity is called Keep Me Breathing, who provide hope for sufferers of CCHS with a 5 year plan to deliver the technology that will let CCHS children breathe in their sleep, without needing a nurse in the room.
An Introduction to Keep Me Breathing!
Medical Endorsement Letter and Signatures - 130+ inc. Great Ormond Street Director or Peadiatric Bioethics and Chair of the International Advanced Paediatric Life Support Group
CCHS explained in one minute by Doctor Alexander Deng
The Times: Hope at last for baby who can't breathe while asleep - featuring the charities directors amazing son Casper!
When Sleeping is Deadly KMB's short film featuring the beautiful Beauden Kent
Any donations to our fundraiser will be greatly appreciated and we will see you at the finish line (I hope, fingers crossed).