My daughter, Aurora, was diagnosed with Smith-Magenis Syndrome in 2023 following a serious lengthy hospital stay and her inability to shift mutiple virus’ all at once. This was followed by genetics testing to determine the cause and her diagnosis finally answered questions we had been seeking for months.

My friend Henry and I are running the London Landmarks Half Marathon this April to raise awareness and money for the SMS Foundation to support families with this rare genetic condition. Our goal is to raise £1000 for the SMS Foundation UK, but we can only achieve this with your help. Your donation, no matter how small, will make a significant difference in the lives of those affected by SMS. It will help fund research, provide essential resources to families, and raise awareness about this rare syndrome.

Without the SMS Foundation, we wouldn't have the support, information and advice that we do today and are forever grateful for this amazing charity. Please help support our cause for Aurora and others living with Smith Magenis Syndrome to lead a fulfilling life and help families struggling to live a normal life with this condition.

Smith-Magenis Syndrome is a rare condition that occurs one in every 15-25,000 births. People with SMS have complex needs and behaviours, along with a learning disability that can range from mild to profound. It is a lifelong condition that will always need extra support.

The SMS Foundation UK exists to support people living with SMS to have a fulfilling future. But we can't do this without financial support. Every penny raised by our LLHM 2025 runners will go towards supporting families living with SMS through the SMS Foundation UK.

Hopefully we can raise some awareness, some money and support families, all for the brilliant SMS Foundation!!