Emma and I are running the Brighton Half Marathon on the 1st March to raise funds for ‘Rare People’. Our daughter, Lil’Lottie has a rare genetic syndrome, DDX3X, linked to epilepsy and learning difficulties. Gene therapy is beginning to make breakthroughs for children with rare genetic syndromes and the charity was set up by my friend and colleague, Dr Rob Galloway, to link research to real change for affected children.

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