Story
Hello everyone,
As you might already know, I am running the London Marathon this year in honor of my incredible niece, a bright and beautiful soul with Rett Syndrome.
Rett Syndrome is a rare, non-inherited genetic postnatal neurological disorder that predominantly affects girls, leading to severe impairments that touch nearly every aspect of their life: their ability to speak, walk, eat, and even breathe easily. Despite the unimaginable challenges my niece and many others face daily, she confronts them with a strength and grace that inspires everyone around her.
Rett UK is a charity dedicated to supporting individuals affected by Rett syndrome and their families. They provide emotional support, high-quality, accurate advice and information, advocacy, and help in reducing isolation. They empower families, build emotional resilience, and assist in making the lives of those with Rett syndrome worth living.
Your generosity can make a real difference in the lives of those affected by Rett Syndrome, providing essential services and research towards a better future.
If you feel moved by this cause, I kindly ask for your support through a donation. Every contribution, no matter how small, helps us move closer to improving the lives of individuals with Rett Syndrome and their families.
Thank you
Hana & Tom