Fundraising for Nerve Tumours UK

We have chosen to support Nerve Tumours UK after Evie Jarnak, 2, was diagnosed with NF1 in November 2022. Evie is the daughter of our Head of Design, Dan Jarnak. Evie’s tumours are benign, but they are affecting her eyesight. She is undergoing weekly chemotherapy for a period of 18 months to try to preserve her eyesight by stunting the growth of the tumours. Nerve Tumours UK has a local specialist nurse who is supporting Evie and her parents, Dan and Rachel.

Nerve Tumours UK provides crucial medical and non-medical support to the 26,500 people in the UK living with Neurofibromatosis. Its a genetic condition that causes nerve tumours to grow anywhere in the body. Our fundraising for Nerve Tumours UK will provide vital support and services to people cared for by the specialist nurse covering Hampshire, Dorset, West Sussex, Wiltshire, and Isle of Wight.

How will our funding support Nerve Tumours UK?

The charity works with many medical professionals, partner patient organisations, universities, and accredited individuals to understand various aspects of how the daily life of those diagnosed with Neurofibromatosis. The results from these research projects are shared with medical professionals as well as their own Specialist Neurofibromatosis Nurse Network, to further help and support those living with the condition. They also allow us the opportunity to improve the information for carers, educational bodies, and employers as well as all associated medical professionals.

Don't forget to include your Gift Aid!