ENDO1000

Tracy Hunter is raising money for The University of Edinburgh

Team: Endo Warriors West Lothian Scotland

Edinburgh Kiltwalk 2025 · 14 September 2025 · Start fundraising for this event

ENDO1000
Campaign by The University of Edinburgh (RCN SC004307)
ENDO1000 is a research project that will collect data and biological samples from 1000 individuals with endometriosis. The resulting resource will allow much needed research into the development of personalised care for women with endometriosis.

Story

As many of you know I live with endometriosis & FND. Unfortunately my endometriosis makes my FND symptoms worse with every flare, most recently a full body tremor & having to use my crutch to get around.

https://neurosymptoms.org/en/about/

So this is going to be a challenge for me so any support would be awesome!

Please donate what you can, skip that morning Starbucks coffee & help support woman with endometriosis.

I have been diagnosed with Endometriosis for 15 years & had 6 surgeries to help manage the growth & symptoms of this condition.

To say it’s been challenging & a rollercoaster is an understatement. To be told at 25 years old as a newly married woman that you are infertile & all you ever dreamed of was giving your daughter a sibling being crushed. Endometriosis robs us of our dreams.

We need help to raise awareness & money for research, so please help me.

Endometriosis can have a destructive impact on quality of life, participation in daily and social activities, physical and sexual functioning, relationships, educational and work productivity, mental health, and well-being.

It causes serious and debilitating symptoms, such as chronic pelvic pain, pain with menstruation, and pain during sex, urination and bowel movements.

Many endometriosis sufferers also have trouble getting pregnant and suffer from fatigue.

It is estimated that at least 190 million women may have endometriosis worldwide, but this is probably an underestimate.

Although some cases can be diagnosed with imaging, there are currently no reliable blood tests for endometriosis and many people have to wait for surgery to look inside the pelvis to make the diagnosis.

The aim of the ENDO1000 project is to accelerate discovery and advance data-driven research into endometriosis diagnosis and treatment, paving the way for a brighter future for women affected by endometriosis.

Donation summary

Total
£5.00
+ £1.25 Gift Aid
Online
£5.00
Offline
£0.00

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